• sickle-cell disease
• chronic lymphocytic leukemia
• the fatal neurodegenerative disease Niemann-Pick Type C
• the genetic muscle disorder hereditary inclusion body myopathy
• the parasitic diseases schistosomiasis and hookworm

PATIENTS FUND RESEARCH

• 37% of POs (patients organizations) funded research in the last 5 years
• Amongst them, half spend more than 30 000 euro yearly and one quarter spends more than 112 000 euro a year
• Some devote more than 100% of their budget, which means they organise fundraisers specifically for research
• POs who are 10 years or older spent about half of their budget on research.

Amongst those POs who funded research:

• 70% had not only funded a specific research project but had also initiated it.
• 75% had helped fund the operating budget of a research project.
• 54% bought equipment and 47% had granted fellowships for young researchers

とあり、患者団体が研究への資金援助を積極的に行っている様子がまとめられています。

投資対象となっている研究は

POs fund mostly basic research.

Patients are naturally interested in all areas of research since they are concerned by many areas of research (genetics, therapeutics, social, etc)

1 out of 2 patient organisations fund basic research and 1 out of 3 fund human and social science research. Contrary to the common belief that patients only support therapeutic research, it is clear that patient groups understand and invest in long-term research projects, as well.

中国のCRO大手であるWuXiやChemPartnerあたりは、世界の製薬会社がどんな化合物を作っているかをどの欧米の大手よりもよく知っているということだ。

という記述です。中国は多様な大手の製薬企業のノウハウを吸収しているのかもしれません。